100 pediatric health blogs every mom should read

  • Author: Health Informer
  • Filed under: Health News
  • Date: Dec 27,2009

Visit these best 100 pediatric health blogs to get expert advice on health, parenting, mental wellness, and much more.

Best Pediatric Health Blog by a Pediatrician

Stop here first for a blog written by those who spend hours a week treating children for all sorts of diseases and conditions.

1. Dr. Greene: Caring for the next generation, Dr. Greene stands out for articles, information on ages and stages, a community, and even a podcast. In addition to the “Conversations With Dr. Greene” section, there are also a variety of offers such as an “Ask Dr. Green” chat and a contest to win an in-home consultation with the doctor.

2. Dr. Sears: Part of the daytime show “The Doctors,” Jim Sears is a certified pediatrician. Read his blogs for the latest discussion in kid’s health, or visit the site with resources for everyone.

3. Dr. Sanghavi: He completed his pediatrics residency and cardiology fellowship at Harvard Medical School and Children’s Hospital Boston after working as a pediatrician for the U.S. Indian Health Service. Recent entries were on allergies, vision, and the three vitamins that could save your baby’s life.

4. Healthy Children: Dr. P. was an expert pediatrician and part of WebMD until he passed away. Parents can still read his blog for tons of expert advice and answers.

5. Dr. Gwenn Is In: She is both a mom and pediatrician and gives advice on both in her blog. Recent entries focused on swimming pools, Happy Meals, and primary care physicians.

6. Vicky McEvoy, M.D.: Dr. Victoria McEvoy graduated from Harvard Medical School in 1975 and is currently an Assistant Professor of Pediatrics at HMS. Visit her blog for expert advice on a ton of pediatric conditions, or join her online network.

7. Dr. Shu Says: This blog shares what Dr. Jennifer Shu has to say about everything related to sensible parenting and healthy living. There are also media clips from her appearances on various television shows.

8. Dr. Laura Jana: Soon after completing her medical training, Dr. Jana became actively involved in national parenting media as a consultant for Dr. Benjamin Spock. You can read the latest news and articles on her site, along with a video gallery of her expert advice.

9. Dr. Nabong’s Pediatric Blog: Dr. Nabong is from Scottsdale, Arizona and is a pediatrician, wife, and mother of four active boys. Visit her blog for up to date information on the different aspects of a child’s growth and development.

10. Dr. Ben’s Blog: Visit here for musings on pediatrics, infectious diseases, and quality improvement in healthcare. Although there hasn’t been a post in a while, you can still get information on immunology, pain management, psychology, and more.

11. Pediatric Health Associates: This short blog contains information on autism, healthy habits, vaccination information, and more. A recent entry dealt with keeping kids safe in the sun.

Best Pediatric Health Blog by a Medical Professional

Because all sorts of doctors and nurses work with children, these blogs are also worth a look.

12. Thrive: Children’s Hospital of Boston runs this blog on health and science. Entries deal with health for kids, teens, and families.

13. Kathy Kuhn: An International Board Certified Lactation Consultant since 1988, Kathy is a registered nurse who has been working with breastfeeding families since 1981. In addition to breastfeeding, her blog contains information on infections, nutrition, working, and more.

14. Octopus Mom: She is the mother of three children under the age of five and a NICU nurse. There are many posts on pediatric health, along with links to useful, related articles.

15. Where’s My Cape?>: KC is a physician of unspecified specialty who fights pestilence, petulance, and poopy diapers. Many entries deal with real life health encounters and recommendations.

16. Doctor Mama: DM is a burnt out mother and physician. She blogs about being a doctor, parent, running, and even self described “moaning and bitching.”

17. Mainstream Parenting: Esther is an American-born, Israeli-raised, part-time family physician, and mommy to three children. Recent posts include the old/new breastfeeding rules, food standards, and support.

18. Enoch Choi: Part of SV Moms Blog, he is a family physician. Although he hasn’t posted in a while, you can still get relevant information on pediatric health.

19. MomWithAStethoscope: A mother and M.D. of unspecified specialty, you can find more health related posts here. They center on goings on in her life, along with humorous entries.

Must Visit Pediatric Sites

Whether a parent, patient, or pediatrician, these sites contain the latest news and information for you.

20. Pediatric Oncall: With a special corner for parents, the site and blog are well worth a visit. You can join a discussion forum, get advice on the hottest topics like vaccines and holistic medicines, or even check out the sections for professionals or babies.

21. Keep Kids Healthy: The site contains a guide to maintaining a child’s safety and health by a pediatrician. Section include useful tools, parenting tips, symptom guide, and even an “Ask the Pediatrician” section.

22. American Academy of Pediatrics: Dedicated to the health of all children, the site has sections for parents, health topics, professional resources, and more. Parents can even use the site to find a pediatrician in their area.

23. Centers for Disease Control and Prevention: An online source of expert health information, there are many tools on this site including for mobile, a CDC-TV, an image library, and more. You can also find information for parents and children on diseases, healthy living, life stages, and even data and statistics for all sorts of conditions.

24. Department of Health and Human Services: Another government sponsored site, it contains information to help you improve your health, the health of your loved ones, and to assist those who need help with daily life. You can also get information on financial assistance, health insurance, and other related resources.

25. Caring For Kids: The Canadian Pediatric Society has a special section just for parents. You can get news, helpful tips, articles by subject, and much more.

26. Red Cross: See what diseases and natural disasters are effecting the country and world by stopping by this blog. You can also get many entries on health and safety.

27. Stop Bullying Now!: Because threats to a child’s health don’t always come from a disease, visit this site by the HRSA to see what you can do about it. The site contains resources for both adults and children.

28. My Pyramid: Get this free guide to the food pyramid just for kids by visiting here. There is even a menu plan, recipes, and links just for kids.

29. Safe Youth: This site is brought to you by the National Youth Violence Prevention Resource Center. Get information on alcohol, dating, depression, and school violence by stopping by this site.

30. Allied Vaccine Group: If you are a parent with questions on vaccinations, visit this site. It is comprised of websites dedicated to presenting valid scientific information about the sometimes confusing subject of vaccines.

Best Pediatric Health Blog by a Website

Get blogs and information on pediatric health from medical, parenting, and other websites by visiting the below.

31. KidsHealth: Get tons of information on the safety of children by stopping here. Subjects include behavior, growth, nutrition, and there is even a section just for kids and teens.

32. Medscape: This site brings you the latest, up to the second medical news, with a special section for pediatrics. Get information on a variety of child related illnesses, read the newest headlines, or view an instructional slide show.

33. Medical News Today: This site brings you hourly health news from well-regarded sources, as well as articles written by their own team. The pediatrics section has the latest news, useful links, and even a video library.

34. iVillage: Stop here for a ton of health information on everything from pregnancy to parenting. Read the latest entry, get many useful articles, or join the discussion boards.

35. The Mayo Clinic: Simply scroll down and choose infant, children, or teen’s health to get tons of useful information. There are expert answers, multimedia entries, and much more.

36. Parent Dish: This site is a one stop resources for parents with questions on all topics. The health section discusses nutrition, safety, home remedies, illnesses, sleep, and special needs.

37. Families.com: There are a variety of blogs to choose from on this site, including health. Here you can find answers for topics such as fitness, yoga, mental health, and even forums.

38. More4Kids: The health and wellness section of this site has information on many common questions and concerns. Recent entries help spot ADHD, contain information on vaccinations, and even useful tips for getting your children to eat healthy.

39. PBS Parents: Get health strategies and tips for talking to kids by visiting this site. Useful articles include communicating with sick children, how to get them to take their medicine, and keeping your parental cool.

40. Family & Parenting: Revolution Health is your home for health and balance and has a special section for families. You can get information on every child from baby to teen, the top concerns, family issues, and much more.

41. Babies Online: Get everything baby related by visiting this blog, including a special section for health. You can also get useful resources such as tips for pregnancy and links to free baby stuff.

Best Parenting and Health Blogs by a Newspaper

Read these blogs on health and parenting from top national publications without purchasing a subscription or registering.

42. KidsPost: This blog gets top listing for its ability to engage both parents and children in the world of news and health from “The Washington Post.” They have many kid focused entries, news just for them, and health tips. There are even great reading recommendations and a summer book club.

43. Motherlode Blog: Part of “The New York Times,” visit here for adventures in parenting. In addition to the helpful blog, you can also get podcasts and commentary from readers.

44. On Parenting: Part of the health blogs at “U.S. News and World Report,” Nancy Shute brings families the latest in health news. Recent entries showed how to use Tylenol safety, bilingual families, and teens who take risks.

45. A Better Life: Get health and medical news by checking out this blog from “USA Today.” Archived posts include the latest in health news and advice, along with a link to their health site, with even more information.

46. Booster Shots: A community of bloggers post on oddities, musings, and news from the world of health in the “L.A. Times.” Recent entries deal with the future of American Sign Language, gene mutation, and swine flu.

47. Health Blog: “The Wall Street Journal” offers this blog to keep families updated on the business of health. Get the latest information on health studies, recalls, and more on the blog./p>

48. Julie’s Health Club: Julie Deardorff is a mother and writer for “The Chicago Tribune.” Her blog contains health and alternative health information for the whole family.

49. Baby Steps: Two parents stumble through parenthood on this blog provided by the “Houston Chronicle.” Recent entries deal with snakes, TB, and more.

50. Health: Part of the “Miami Herald,” parents and families can get answers to all sorts of health questions here. There is a section for health folklore, a forum, Q & A section, and more.

51. Mom’s Blog: Reporter Nancy Churnin covers healthy families for “The Dallas Morning News.” Topics discussed include acne, pets, an array of guest bloggers, and more.

Best Pediatric Mental Health Blogs

Because the mental health of a child is also vital, check out these blogs for both parents and kids.

52. Babyshrink: Dr. Heather is a licensed psychologist with a specialty in the development of babies, toddlers, preschoolers, and parents. Visit her blog for tons of useful entries, podcasts, and even an “Ask Dr. Heather” option.

54. Momma Data: Dr. Polly Palumbo is a psychologist, mother of three, and child-research junkie. Her blog covers everything from breast feeding to teen dieting.

55. Depression: Gabrielle Melin is a professional psychiatrist at the Mayo Clinic. Any parent or child suffering from this condition should stop by this site for the best in treatments, drugs, and more.

56. The Carlat Psychiatry Blog: Dr. Carlat is a psychiatrist in private practice in Newburyport, Massachusetts and an Associate Clinical Professor of Psychiatry at Tufts Medical School. Visit here for opinions on the drug industry, mental health, and more.

57. Dr. Deb: She is a psychologist specializing in trauma and depression. Posts often deal with psychoanalysis, stigma, anxiety, and diagnostics.

58. Life Works: Founder of Balance Integration and work-life expert Tevis Gale Trower shares ideas to help you achieve a mindful balance. Get useful tips on empowerment, living off the grid, peace, and many other mental health minded posts for families.

Best Pediatric Health Blog for Kids

Got a child who is old enough to use the computer? Then have them stop by these health sites with the child and/or teen in mind.

59. Video Intervention/ Prevention Assessment: Stop here for real life videos from kids and teens on illness. They range from asthma, overweight, cystic fibrosis, and more.

60. Staying Healthy Everyday: Get useful healthy tips for kids from all of their favorites at “Sesame Street.” You can even get videos on staying healthy and related links.

61. Patients of the Month: St. Jude is a leading hospital for children and features a different patient every month. Stop by to see the latest, or visit the archives dating back to 2002.

62. How Stuff Works: Kids can visit here for a simple explanation to many common questions, including the health related. View by the newest articles, most popular, or you can even watch a video.

63. Human Anatomy Online: The site has animations, hundreds of graphics, and thousands of descriptive links. Study the anatomy of the human body on this site for students or those who just want to know more about the medical descriptions used by doctors and nurses.

64. KidsHealthPediatrics: Visit here for kid friendly information on health. You can get car safety tips, a vaccine policy statement, and if you live in the Scottsdale area, you can get a free prenatal class.

Best Parenting Blogs

Go beyond pediatric health and learn the best in all forms of parenting by visiting these blogs.

65. Mom Logic: A community of bloggers post on many parenting topics including health, diet, and fitness. There is even a special section for family and kid health.

66. Parents.com: This site has a ton of information on everything from getting pregnant to parenting teens and everything in between. There is also a toy recall finder, Kid of the Day, and TV channel with even more information.

67. Today’s Parent: An entire community of professional bloggers can be found here. Choose from health topics such as special needs or a specialty blog on saving money.

68. Parenting: Oprah Winfrey’s site has tons of advice for everyone, including parents. Stop by for tons of help for parents, exclusive articles, a Q & A section, and much more.

69. Smarter Babies & Kids Blog: Stop here for tips on games, going green, maternity, nursery, parenting, and more. They even have a health section full of expert advice.

70. Parenting Squad: This syndicated blog brings all the best parenting posts to one place. Entries deal with many different subjects such as back to school and medical emergencies.

71. BabyCenter: Don’t be fooled by the name, this site has everything from pregnancy to big kids and even a special section for parents. Favorites include “Is it safe?” and “Is it Normal?”

72. Zero to Three: Here you’ll find science-based information and tools designed to help parents and caregivers nurture their young children’s development. Topics include brain development, language and literacy, health, play, and more.

Best Doctor’s Blogs

Get health information and advice for the whole family by checking out these doctor’s blogs.

73. Kevin MD: With tons of new entries on the latest health issues, no wonder this is a leading blog. Recent posts tackle obese doctors and their patients, Twitter for health, cutting healthcare costs, and many more.

74. NHS Blog Doctor: Visit here for Dr. John Crippen’s weekly diary of the pleasures and pitfalls of family medicine in the modern British National Health Service. Recent entries deal with the dangers of young surgeons, money down the drain, and the value of regular service.

75. Doctor Anonymous: Dr. A. is a family physician living in Ohio. In addition to the regular blog posts, you can also get a useful podcast on many health topics.

76. Dr. Wes: He is an internal medicine doctor specializing in heart disease. Top posts include an open letter to patients, healthcare Hindenburg, and mine’s bigger.

77. Musings of a Distractible Mind: Dr. Rob a primary care physician from the Southeastern United States and father of four children. You can get musings on American medicine, EMR posts, and a number of other categories.

78. White Coat Notes: This site covers everything from the latest research findings to what’s on the minds of the innovative doctors, nurses, and scientists who work here. Recent entries deal with obesity, sleep deprivation, summer hunger, and much more.

79. Grunt Doc: Stop here to read the ramblings of an emergency physician living in Texas. In addition to his regular posts on a variety of topics, you can also read posts that he enjoyed including public healthcare, reform, strokes, and more.

Best Pediatric Health Blog for a Specific Condition

If your child suffers from a specific condition, stop by these blogs to learn more about ADHD, autism, and more.

80. ADHD Medications and Treatments: Dr. Sogn’s medical blog is no longer active, but you can still find tons of useful information on the condition. Posts deal with different drugs, supplements, and even related disorders.

81. ADHD Blog: Another blog dedicated to ADHD, it is written by Dr. Kenny Handelman. Along with the blog, you can get information on treatment, research, adult ADHD, and parenting.

82. Allergies and Asthma: Another retired blog, Dr. Enright shares expert information on these conditions in children and adults. Topics discussed include mold, smoke, Chantix, and more.

83. Apraxia Kids: The blog is dedicated to helping children with this speech disorder. You can find many useful entries, or follow one of the related links.

84. Coach for Asperger’s: Patricia Robinson is a coach who works with people with Asperger’s, high functioning autism, and those who just travel on a different path than the rest of the world. Visit her blog for tips, advice, and even recommended reading.

85. Autism Diva: She has a degree in psychology and a popular following. Read her blog for the latest in autism findings, and you can also get many related links.

86. Left Brain/Right Brain: This British blog is dedicated to autism news, science, and opinion. Get tons of information on the condition including the latest in research and vaccines.

Best Podcasts for Pediatric Health

For even more information on pediatric health, download one or all of these free health podcasts.

87. Pediascribe: Dr. Mike has 147 episodes and counting on his podcast. Recent episodes are on asthma, tantrums, andG6PD deficiency. 88. http://www.blogtalkradio.com/usmilemom”>New Mom Coach: Coaches Lesly and Bethany guide parents through life expecting or with a newborn. Tips include birthing, postpartum depression, and even staying sane during a troubling economy.

89. Discovery Health: Choose from a variety of health topics for the entire family. You can get information on the most common and rare diseases, weight loss, and more.

90. Dr. Robin Smith: Part of Oprah Radio, Dr. Robin’s combination of psychological insight and practical advice will help listeners transform their relationships and personal lives. Listen to the current show or browse the archive.

91. Pritty Kat: She educates parents and caregivers on how to give black children self love and self esteem. Visit for loads of advice and watch out for explicit language.

Best Miscellaneous Blogs for Pediatric Health

Stop by these blogs for the best of the rest in pediatric health.

92. Doctor David’s Blog: A pediatric oncologist, this blog is ideal for parents and children who are dealing with cancer. Posts deal with life as a doctor, patient stories, cancer research, and more.

93. Safety 4 Kids: Get information on everything from car seats to dry drowning on this archived blog. You can also get the latest health news, message boards, and more.

94. Center on Media and Child’s Health: Visit here for research and news on how the media effects the health of children and teens. They also post links to studies and recommendations for health and staying safe.

95. Stories of Pregnancy & Birth Over 44 Years Old: If you are an older parent, or would like to become one, visit this site for stories and tips. Recent entries cover menopause and parents who defied the odds.

96. Child Safety Recalls: Stop here for the latest items, toys, food, and more for children that has been recalled. View the most recent, or check out the archive.

97. Safe Mama: This independent blog is a one stop resource for child safety, health, well being, and eco-consciousness. You can even get free, downloadable cheat sheets in addition to the blog entries.

98. American Academy of Pediatric Dentistry: Get expert information on the health of your child’s teeth and gums by stopping here. The Parent Resource Center has tips for back to school, downloadable brochures, finding a dentist in your area, and more.

99. Brian Deer: He covers the more rarely seen side of the healthcare industry. Get alternative news on drug companies, insurance, and more by stopping by the site.

100. Liddle Kidz Infant and Pediatric Massage Blog: Don’t think a massage can help your kids? Then check out this blog by a Certified Pediatric Massage Master Teacher for more on this and other pediatric topics.

Make sure you consult your pediatrician or family physician before trying a treatment or following the advice found in these best 100 pediatric blogs.


30 minutes to better health in 2010

Adding 30 minutes of daily physical activity should top your list of New Year’s resolutions for a healthier 2010, says Peter Brubaker, professor of health and exercise science at Wake Forest University. Regular daily exercise is the most important step toward a healthier lifestyle, Brubaker says.

“People don’t realize you can get tremendous benefit from regular physical activity even if you never lose a pound,” he says. The benefits of increased physical activity include a reduced risk for heart disease, stroke, diabetes, colorectal cancer, breast cancer, bone and joint conditions, and sleep apnea.

Brubaker, who is the director of the healthy exercise and lifestyle programs (HELPS) at Wake Forest, offers several tips for how to increase daily physical activity:

Set a goal of 30 minutes a day of physical activity. It doesn’t need to be all at once. Five minutes here, 10 minutes there is fine. As long as it is done at moderate intensity, you will get sufficient health benefits.
Walk. For most people, the easiest and most efficient activity is simply walking.
Wear a pedometer. Recent studies have shown that people wearing pedometers increase their activity level by 25 percent.
Build activity into your daily routine. Get up from your desk to deliver a message. Take the stairs instead of the elevator. Add some extra steps when you are doing household chores. Find small ways to get moving.
Record daily physical activity in a journal. Self-monitoring is important when making a lifestyle change and journaling activity levels can be good reinforcement.
Don’t worry so much about weight loss. Realize if you are regularly active you can get significant health benefits even if you never lose a pound. People serious about weight loss should build in 60 minutes per day of physical activity.
Find activities you enjoy and feel good about doing. Try a variety of activities. Variety is good for the body – and the mind.
Get the support of friends and family. Challenge them to add 30 minutes of physical activity to their daily routine and you can hold each other accountable.
Set realistic expectations. There is a risk in building up expectations that you’ll make a change Jan. 1. The biggest obstacle to successful lifestyle change is expectation. People are unrealistic about what they can achieve and how quickly they can achieve it. Any time is a good time to make a commitment to change your life style.

Source: Wake Forest University


2009: A year of many firsts in efforts to overcome Lupus

  • Author: Health Informer
  • Filed under: Health News
  • Date: Dec 24,2009

Achievements in Research, Education and Advocacy Cause for Celebration and Hope

The year 2009 will be remembered as a year of many firsts for lupus, including the first successful phase III clinical trial of a potential new treatment for lupus, the launch of the first-ever Ad Council public awareness campaign for lupus, and the first comprehensive report on the barriers to lupus drug development. And it appears there are no signs of any slowing of momentum as we enter the New Year.

Advances during 2009 in basic and clinical research on lupus hold promise for a greatly improved quality of life for the 1.5 million Americans and the more than five million individuals worldwide who are living with lupus. Two pivotal studies of Benlysta(TM) (belimumab) reached their primary endpoints that should enable the drug to become the first new treatment approved for lupus in more than a half-century. In addition, several studies published during 2009 provided new clues into the underlying causes of lupus and how the disease affects people of different genders, ages, races and ethnicities. In June, the Lewin Group issued a report commissioned by the Lupus Foundation of America (LFA) on barriers to lupus drug development. The report’s recommendations provide a roadmap to the further development and approval of a full arsenal of new, more tolerable and effective treatments for lupus.

Continued Growth in Awareness and Public Support for Lupus

Awareness of lupus further grew in 2009 with the launch in March by the Ad Council of a national public awareness campaign that targets individuals at greatest risk for development lupus. In addition, musicians Julian Lennon and James Scott Cook released a new digital single, “LUCY,” that helped to bring greater worldwide attention to lupus and generate funds to support lupus research.

The United States Congress expanded its support for lupus by greatly increasing funding for the National Lupus Patient Registry, and providing new funding for a national health provider education program to improve early diagnosis and treatment of lupus and reduce health disparities. In addition, Congress appropriated additional funding to support lupus research through the National Institutes of Health and the Department of Defense’s Peer Reviewed Medical Research Program.

These achievements were the result of the combined efforts of the Lupus Foundation of America and its national network of chapters and support groups, scientists and clinicians, industry representatives, congressional champions and leaders of federal agencies, countless lupus advocates and other volunteers, donors, and individuals with lupus and their families who have dedicated their energies to address this urgent health problem. While momentum had been building throughout the past decade, the historic events of 2009 provided solid evidence that we have entered a new era of discovery and hope in the search for the causes of and cure for lupus.

The LFA has compiled a list of ten significant accomplishments, including several firsts, in efforts to overcome lupus and its impact on individuals and families.

1. First Successful Completion of a Phase III Clinical Study of a potential New Treatment for Lupus

Human Genome Sciences (HGS) and GlaxoSmithKline (GSK) announced positive results from BLISS-52 and BLISS-76, two large-scale phase III clinical trials of BENLYSTA(TM) (belimumab) for treating systemic lupus. Both trials succeeded in meeting their primary endpoints, which should make BENLYSTA eligible for approval by the U.S. Food and Drug Administration (FDA). Upon approval, BENLYSTA would be the first-ever treatment developed specifically for lupus, and the first new FDA-approved drug for lupus in more than 50 years.

2. Ad Council Launches its First-Ever National Public Awareness Campaign on Lupus

The Ad Council launched its first national multi-media public awareness campaign for lupus. Sponsored by the U.S. Department of Health and Human Services’ Office on Women’s Health (OWH), the campaign aimed to reach individuals most at risk for developing lupus – young women of childbearing age, especially African American, Asian, and Hispanic women. The Lupus Foundation of America was the Founding Partner with OWH on the campaign that is expected to generate $30 million annually in donated media exposure for lupus.

3. First Comprehensive Study to Address Barriers to Lupus Drug Development

The Lewin Group issued a report following a 9-month study commissioned by the LFA that included recommendations to overcome barriers that have obstructed lupus drug development. The LFA immediately began implementing the recommendations by launching the first-ever Collective Data Analysis Initiative (CDAI). The project will examine data from previous lupus clinical trials to learn the impact that background therapies may have had on trial outcomes and use that knowledge to improve the design of future trials of potential new therapies for lupus.

4. First-Ever Consensus Definition of Lupus Flares Reached by 120 International Lupus Experts

The LFA addressed a significant barrier to advancing the science and medicine of lupus by securing consensus on a definition of lupus flares. The Lupus Foundation of America Flare Definition (LFA-FLARE) was developed through a rigorous three-year process that involved more than 120 global lupus experts. Once validated, the LFA-FLARE is likely to be used mainly as a primary or secondary outcome for clinical trials, to assist in establishing entry criteria for certain clinical trial designs, and may be useful for managing lupus.

5. Scientists Gain Clues on the Underlying Causes and Triggers for Lupus

Researchers identified a gene linked to lupus, interleukin-1 receptor-associated kinase 1 (IRAK1). Its location on the X chromosome may help explain why females are 10 times more susceptible to the disease than males. Scientists also found that people whose vitamin D tests showed low levels of the nutrient had higher levels of lupus antibodies. The study suggests that a vitamin D deficiency could serve as a catalyst to developing lupus in people who are genetically predisposed to the disease.

6. Congress Funds New and Continuing Lupus Research

In 2009, Congress provided $4 million to support the National Lupus Patient Registry, as part of a broader national epidemiological study on lupus, and $1 million for a national health provider education program to improve early diagnosis and treatment of lupus and reduce health disparities. Congress also continued to support lupus research through the Department of Defense’s Peer Reviewed Medical Research Program, which last year provided an additional $1.4 million for a study of lupus biomarkers.

7. New Companies Entered the Lupus Market and New Studies Planned to Develop More Tolerable and Effective Treatments for Lupus

Pharmaceutical and biotechnology companies continued to expand efforts during 2009 to develop and test potential new treatments for lupus. UCB and Immunomedics announced positive phase IIb study results for epratuzumab, ImmuPharma released promising findings from a final phase IIb study of Lupuzor(TM), and Genentech presented encouraging data from a phase I study of rontalizumab. In addition, approximately twenty clinical studies were underway at the end of 2009 to test possible new therapies for lupus.

8. LFA Awards New Research Funding to Address Issues Critical to Lupus Patients

The LFA awarded new funding for research grants to address issues of critical importance for people with lupus, including the management of the disease in children and teens, improving health outcomes, the underlying genetic causes of male lupus, facilitating greater accuracy in the diagnosis of lupus, and the development of new, safe, and effective treatments. In addition, the LFA awarded five student fellowships to foster an interest in lupus research, and renewed funding for the Lupus Biomarkers Clinical Consortium, a collaborative initiative that seeks to identify biomarkers that hold promise to facilitate the diagnosis and treatment of lupus. In all, the LFA supported the work of 13 lupus investigators in 2009.

9. A Growing Number of Lupus Studies Presented at World’s Largest Scientific Meeting for Rheumatologists

Building momentum for scientific discovery in lupus was evident when more than 260 abstracts of research studies related to lupus were presented during the 75th Annual Scientific Meeting of the American College of Rheumatology in Philadelphia during October. The LFA produced video highlights of more than 20 significant studies. The videos are available at www.lupus.org/acr. During the conference, LFA officials also met with the Foundation’s medical and corporate advisors to discuss the future direction of research on lupus and to review recommendations from an important new report on barriers to lupus drug development.

10. Lupus Enters Popular Culture and Awareness Increases as LFA Expands its Presence on the Net

As part of its Patient Voices series, The New York Times website featured the stories of people from across the country who are affected by lupus. The LFA further expanded its presence on YouTube, Facebook and Twitter to engage a new online audience in advocacy and public awareness. To highlight the need for safer, more tolerable, and effective medications, the LFA launched Band Together for Lupus, that asks people to wear an LFA purple wristband until there is a medication approved by the FDA specifically for lupus. Musicians Julian Lennon and James Scott Cook released the digital single, “LUCY,” with proceeds going to support lupus research, generating more than a quarter million views to LFA’s YouTube page.

Lupus is an acute and chronic autoimmune disease in which the immune system is unbalanced, causing inflammation and tissue damage to virtually any organ in the body. Its health effects include heart attacks, strokes, seizures, miscarriages, and organ failure. Ninety percent of the people with lupus are women, and it is two to three times more common among African Americans, Hispanics/Latinos, Native Americans, and Asians. Lupus is unpredictable and potentially fatal, yet at present no satisfactory treatment or cure is available.

Source: Lupus Foundation of America


The American Ambulance Association (AAA), the voice for ambulance services nationwide, is creating a Web-based national emergency health registry through a partnership with Docvia. The innovative new Web service, invisibleBracelet.org (iB), will enable patients to register personal vital health details and in the event of an emergency, automatically notify friends and family through the largest network of EMS providers in the United States.

In the first quarter of 2010, individuals that live, work or frequently travel within the service areas supported by AAA-affiliated EMS providers will be able to register and maintain unlimited access to a secure online account that holds up to 10 “In Case of Emergency” (ICE) contacts and their vital health information. For $5 per year, a registered member can maintain an account accessible by licensed, trained and certified medics and dispatchers during medical emergencies. When emergency care is needed, authorized EMS responders are provided temporary, read-only access to a member’s information using a HIPAA-compliant search engine. If ambulance transport is required, medics can automatically generate text or email messages to the member’s designated ICE contacts, instantly notifying loved ones when and where the member is being transported by ambulance.

“We believe the Invisible Bracelet will revolutionize patient services and become the new standard of practice for the ambulance services industry,” says Jim Finger, president of the AAA. “For millions of Americans, iB will, and should, become an essential. This voluntary method of information sharing between EMS providers and patients could be just the thing that saves more lives and relieves anxiety for family members.” AAA-affiliated EMS providers will be the first to support the national rollout of the iB Web service. After the initial launch, which will be announced early next year, other EMS providers not currently affiliated with the AAA will have the opportunity to join the iB Medic Network.

“Our software and engineering by itself is impressive, but it’s the human network of trained and experienced medics that makes this so powerful,” says Noah Roberts, CEO at Docvia. “Everyone deserves a safe, simple and inexpensive way to communicate during a medical emergency. While so many groups continue to talk about establishing interoperability standards and improving health access, the American Ambulance Association is delivering results out on the frontline of health care.”

Source: American Ambulance Association